MS Sucks was my first title. That was a kind thing to say about it.
It took 4 months for me to get get my initial diagnosis, that was SO lucky! The shock was that l went from having physio for a bad ankle for being told l needed a brain scan. I realise that so many people are in “limbo land” for a long period of time. I realised very quickly how lucky l was.
MS really does suck and one of the worst things is the not knowing just how quickly it will progress and having no idea just how quickly things WILL progress! After 14 yrs ish l’ve done okay but l honestly thought l’d be in a far worse situation by now. However, that doesn’t mean to say that l’m happy.
That may be an understatement!!!! The pain is excruciating, it’s truly hard to explain to anybody how bad it is. I have to tell people that l am always in pain however if it is particularly bad then l will mention it. I’m not trying to be noble but you have to suck it up sometimes.
After my hospital stints last yr l have discovered that l am experiencing PTSD. I was always experienciencing anger due to MS diagnosis and stuff regarding my mum, however, now (to put it mildly) l am a VERY VERY grumpy bum!!! I have NEVER experienced such anger in my whole life.
I’ll tell you more bout the anger but please rease read, share and don’t be too critical about my pants grammar x
MS Sucks!!! 